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    Archived pages: 97 . Archive date: 2014-01.

  • Title: Foundation For Faces of Children » Home
    Descriptive info: .. |.. Glossary.. Contact Us.. Search.. About Us.. Who we are.. Mission.. Financial Info.. Policy.. Leadership.. Contact Info.. Craniofacial Conditions.. Condition Descriptions.. For Patients and Families.. Quality Care.. Issues and Advice.. Library and Resources.. Scholarship Information.. Helpful links for Patients and Families.. News and Events.. For Health Care Professionals.. Support Us.. Make a Donation.. Volunteer Opportunities.. FFC Community.. Teens and Young Adults.. News & Events.. 2014 Programs.. Programs and events for all ages!.. Amazon Smile.. A SPECIAL GIVING OPPORTUNITY!.. Scholarship Applications due by April 1.. Our Mission.. The Foundation for Faces of Children is dedicated to improving the lives of children with craniofacial differences, including cleft lip,  ...   accessible information about facial differences, and to advocate for the best care possible for children with facial differences.. Join our e-mail list.. Check us out on Facebook.. Expert Reviewed Content.. Leading doctors in craniofacial conditions have reviewed the medical content of this site.. Learn More.. New & Expectant Parent Guides.. Advice about everything from feeding and breathing to sleeping and nutrition.. What you need to know about prenatal diagnosis.. Choosing Team Care.. Guide to selecting a team of health-care providers.. A checklist of what to bring along to your team visits.. 258 Harvard St.. #367 Brookline MA 02446 617.. 355.. 8299.. 2014 Foundation for Faces of Children..

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  • Title: Foundation For Faces of Children » Glossary
    Descriptive info: Home.. A.. B.. C.. D.. E.. F.. G.. H.. I.. J.. K.. L.. M.. N.. O.. P.. Q.. R.. S.. T.. U.. V.. W.. X.. Y.. Z.. Alveolar bone graft.. A procedure performed in children whose cleft involves the gum line.. It provides a complete bony ridge that enables permanent teeth to grow normally.. Amniocentesis.. A procedure for obtaining a sample of amniotic fluid from the sac in the uterus of a pregnant woman by inserting a hollow needle through the abdominal wall.. This is used for the diagnosis of certain genetic defects.. Astigmatism.. Visual defect caused by abnormal curvature of the cornea that results in a blurry image.. Brachydactyly.. Abnormally short fingers.. Branchial, or pharyngeal, or visceral arches.. Tissues that forms the crucial bones, skin, nerves, muscle, and other features of the head and neck area.. The tissues grow in pairs on each side of the head and meet in the centerline of the face and neck.. Cataract.. Clouding of the lens of the eye or its surrounding transparent membrane.. Choanae.. Funnel-shaped, posterior openings of the nose, just above and behind the hard palate.. Chorionic villus sampling (CVS).. A procedure for taking a small piece of placental tissue (chorionic villi) from the uterus in early pregnancy to check for the presence of genetic defects in the fetus.. CVS can be performed through the cervix or the abdomen.. Collagen.. Protein that forms the connective tissue of the body and gives tissue its structure.. Coloboma.. Slit or fissure in any part of the eye or eyelid caused by failure to form properly.. Congenital.. A condition that exists at birth.. Cranial sutures.. Seams that separate the bones of the head.. As a child develops, the sutures normally separate to accommodate the enlarging brain, with bone filling in the gaps.. Distraction osteogenesis.. Incision and gradual separation with the use of a mechanical device to lengthen a bone.. Embolization.. A treatment for some vascular abnormalities that involves the injection of material via a catheter (tube) into the center of a malformation.. Endothelial cells.. Cells that comprise the inner lining of blood and lymph vessels and other bodily structures.. Excision.. Removal of tissue by a surgical procedure.. Exophthalmos.. Bulging eye(s) caused by swollen soft tissue.. Exorbitism.. Bulging eye(s) caused by eye socket(s) that are too small or too shallow.. Free Muscle Transplantation.. Surgical procedure performed on children with Mobius syndrome in which unaffected facial muscles are moved to areas of the face that are paralyzed.. Gastrostomy.. Surgical procedure that enables children to be fed through a tube placed directly in the stomach.. Genioplasty.. Procedure to alter the appearance/position of the chin.. Glaucoma.. Disease marked by increased pressure in the eyeball that can result in gradual loss of vision.. Glossoptosis.. Condition in which the tongue is pushed toward the back of the throat, where it can block the airway.. Hard palate.. Bone that forms the anterior, or front portion, of the roof of the mouth.. Head sutures.. The seams that separate the bones of the head.. As a child develops, the sutures are normally pushed apart to accommodate the  ...   ear, is either closed off or absent.. Microtia and atresia usually occur together.. Typically they are part of hemifacial syndrome.. Learn more about Microtia in our Q A about First and Second Pharyngeal Arch Syndromes.. Back to Conditions Index.. Mitral Valve Prolapse.. Heart problem that occurs when the mitral valve closes and protrudes into the adjacent heart chamber.. This sometimes occurs in children with Stickler syndrome.. Myringostomy.. Insertion of a ventilation tube through the eardrum after removal of fluid from the middle ear.. Occipital.. the back part of the head (occiput).. Orbital dystopia.. One eye is lower than the other.. Otitis media.. Infection of the middle ear.. Otolaryngologist.. Physician who specializes in disorders of the ear, nose, and throat.. Pharyngeal arch.. Tissues that grow toward each other from the sides of a fetal head and fuse at the centerline of the head and neck.. Also called visceral arch, or branchial arch.. Pharyngeal flap.. Procedure performed in about 10 -15 percent of children with a cleft palate.. It corrects nasal speech, and is usually done when a child is four or five years old.. Pinna.. Outer, visible portion of the ear; also called auricle.. Ptosis.. Sagging or drooping of a part of the body, for example, blepharoptosis means drooping of the upper eyelid.. Pyogenic granuloma.. Small growth filled with tiny blood vessels that can bleed easily.. Retrognathia.. Congenital or acquired condition in which the lower jaw is set back from the upper jaw.. Sclerotherapy.. Direct injection of an irritating solution into a vascular malformation to cause it to shrink.. Scoliosis.. Abnormal curvature of the spine.. Septum.. Dividing membrane of cartilage between the nostrils.. A deviated (or crooked) septum may cause difficulty with breathing or obstruct the sinuses.. Soft palate.. Tissue at the back of the mouth that moves during speech and separates the mouth from the top of the nasal cavity.. Sonogram.. Detailed image of a fetus taken by high-resolution ultrasonic equipment.. Strabismus.. Muscular condition in which the eyes do not move in unison.. Strip craniectomy.. Corrective surgical procedure performed on children with single-suture craniosynostosis.. It involves removing a plate of bone at the top of the head to enable the head to develop more normally.. Sudden Infant Death Syndrome (SIDS).. Death of an apparently healthy infant, usually before one year of age and usually during sleep.. The cause is unknown.. Symphalangism.. Fusion of the finger and/or toe joints.. Syndactyly.. Webbing of the fingers and/or toes.. Syndrome.. Group of signs or symptoms in different parts of the body that occur together and make up a particular pattern or condition.. Telangiectasias.. Abnormal dilation (widening) of capillary vessels.. Torticollis.. Contraction or tightness of muscles in the neck that causes the head to be drawn to one side and rotated so the chin points to the other side.. Tracheostomy.. The surgical creation of an opening in the windpipe through the neck to allow the passage of air.. Uvula.. Dangling tissue at the end of the soft palate.. Vesicle.. Tiny fluid-filled skin bubble.. Visceral arches.. See Pharyngeal arches.. Zygoma.. Cheekbone; the bony arch from the face to the head..

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  • Title: Foundation For Faces of Children » Contact Information
    Descriptive info: Contact Information.. Foundation for Faces of Children.. 258 Harvard Street, #367.. Brookline, MA 02446-2904 USA.. Tel: 617.. E-mail Us.. Your name.. Your email address*.. Select - Topic of interest.. Join our Email List.. Request Video.. Request Publication.. Donations.. Volunteering.. Request for support contacts.. Events.. Other.. Sign up for our online version of the FFC Newsletter, "Facing the Future".. (*) denotes required fields.. Email comments here..

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  • Title: Foundation For Faces of Children » Who we are
    Descriptive info: The Foundation for Faces of Children (FFC) is a New England-based, not for profit, 501(c) 3 organization.. We provide.. clear, accurate information and other educational resources to children born with craniofacial conditions and their families.. The Foundation was started by plastic surgeon John B.. Mulliken, MD, and a handful of parents whose children were receiving treatment at the Craniofacial Centre at Children's Hospital Boston.. Organizers included Norman and Rita Bartczak, Fred and Polly Frawley, and Robert and Priscilla Bradway.. With the assistance and support of Children's Hospital nurse Dotty MacDonald, RN, and coordinator Kathryn (Kit) Mount, initial efforts focused on developing funding for teaching materials and information for parents..  ...   achieve this, FFC collaborates with leading specialists to provide accurate, up-to-date information for patients and parents, regionally, nationally, and internationally.. Our Services.. Cleft Lip Palate Video.. An educational video, Understanding Cleft Lip Palate, A Guide for New Parents.. Video en Espanol: This video, Como Entender La Condicion De Labio Y Paladar Hendido: Una Guia Para Los Padres , is also available in Spanish.. Scholarships.. A scholarship program for young adult residents of New England who are affected by craniofacial conditions.. Newsletter.. Our informative newsletter, Facing the Future.. To receive a copy, please.. click here.. Social, fundraising, and other volunteer initiatives including the annual Family Picnic and Paces for Faces walkathon..

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  • Title: Foundation For Faces of Children » Mission
    Descriptive info: The Foundation for Faces of Children is dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences.. Our mission is to provide patients and families with the most accurate, up-to-date, and accessible information about facial conditions, and to advocate for the best care possible for children with facial conditions.. We achieve this by collaborating with leading specialists,  ...   goals.. We are a not-for-profit organization entirely supported by private donations, grants, and fund-raising initiatives.. Join Our Online Community.. If you would like to receive periodic news and updates from FFC, become a Friend of Faces.. Follow the link below and complete our registration form.. Join Now.. We respect your privacy; names will not be shared or sold.. To unsubscribe at any time, send an e-mail to:.. info@facesofchildren.. org..

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  • Title: Foundation For Faces of Children » Financial Information
    Descriptive info: Financial Information.. Foundation for Faces of Children is a volunteer-led, 501 (c) (3) not- for-profit organization supported entirely by private donations, grants, and fundraising initiatives.. We receive no government funding.. Approximately 14% of income is used for administrative and fundraising expenses.. The balance goes directly to programs that benefit affected children and their families.. We comply with all IRS and other regulations governing tax-exempt organizations, and provide financial information to GuideStar, a nonprofit database.. Our filings are available at.. www.. guidestar.. Questions about financial matters may be directed to:.. Guide Star..

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  • Title: Foundation For Faces of Children » Non-Discrimination Policy
    Descriptive info: Non-Discrimination Policy.. The Foundation for Faces of Children is dedicated to helping patients with craniofacial conditions and their families.. We do not discriminate on the basis of race, color, national or ethnic origin, gender, political affiliation, disability, age, sexual orientation, religion, creed, or marital status in our programs or activities..

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  • Title: Foundation For Faces of Children » Board of Directors
    Descriptive info: The leadership of the Foundation is composed of many dedicated professionals, parents, affected adults and other interested individuals who recognize the importance of providing access to the best information and guidance in order to help the families of affected children find quality care.. They all serve on a volunteer basis, and their many different viewpoints inform the shaping of policy and guidance of the organization.. Board of Directors.. Medical Advisory Panel.. Advisory  ...   (Fred) C.. Frawley, III.. Clerk.. North Yarmouth, ME.. William (Bill) Pratt.. Treasurer.. South Weymouth, MA.. Patricia (Tricia) Connery.. Recording Secretary VP of Communications.. Maynard, MA.. Mary Lania, RN.. VP of Programming.. Westwood, MA.. Meera Oliva.. VP of Fundraising.. Newton, MA.. John B.. Mulliken, MD.. Co-Founder.. Brookline, MA.. Dorothy (Dotty) M.. MacDonald, RN, BSN.. Braintree, MA.. Kara Jackman.. Adrianne Musto.. Mansfield, MA.. Bari Popkin.. Needham, MA.. Ursula Costigan, Esq.. Amesbury, MA.. Monir Sakha..

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  • Title: Foundation For Faces of Children » Condition Descriptions
    Descriptive info: For an alphabetical listing of all conditions, please click on the conditions Index tab.. Commonly Searched Conditions.. Conditions Index.. Cleft Lip.. Cleft lip is an opening in the skin and muscle between the nose and upper lip; often the gum ridge is also involved.. Learn More.. Related Conditions:.. Unilateral.. Bilateral.. Complete.. Incomplete.. Cleft Palate.. A cleft palate is an opening in the roof of the mouth.. Soft palate.. Hard palate.. Robin Sequence and Associated Syndromes.. Robin sequence [spoken with a French pronunciation 'Row-BAN' previously known as Pierre Robin syndrome] begins with a lower jaw that is either too small (micrognathia) or is set back from the upper jaw  ...   posterior plagiocephaly.. Möebius Syndrome.. Möebius syndrome begins early in the development of the nervous system.. Craniosynostosis.. Craniosynostosis is the term for a group of conditions in which a baby's head develops abnormally because the seams between the bones close prematurely.. Single suture.. Scaphocephaly (Sagital synostosis).. Trigonocephaly (Metopic synostosis).. Synostic Frontal Plagiocephaly (Unilateral coronal synostosis).. Synostic Posterior Plagiocephaly (Lamboid synostosis).. Multiple suture.. Apert syndrome.. Crouzon syndrome.. Pfeiffer syndrome.. Saethre-Chotzen syndrome.. Carpenter syndrome.. Vascular Anomalies.. Vascular anomalies (abnormalities) occur in blood or lymph vessels.. There are two major types: hemangiomas and vascular malformations.. Hemangiomas.. Vascular Malformations.. Capillary malformation (CM).. Lymphatic malformation (LM).. Arteriovenous malformation (AVM).. Venous malformation (VM).. Combined vascular malformation..

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  • Title: Foundation For Faces of Children » Quality Care
    Descriptive info: Treatment Timelines.. The Team Approach.. Team Composition.. Questions to Ask.. Helpful links for.. Patients and Families.. The Foundation for Faces of Children endorses a team approach to the treatment of children with craniofacial conditions.. We believe that the best outcomes result from collaborative care by a team of professionals who are experienced in the management of these disorders and who have expertise in your child's specific condition.. Your child deserves the care of an experienced team.. Surgeons who perform a high number of procedures offer the best chance for a successful outcome with fewer revisions.. For cleft lip and palate, seek out a surgeon who does at least 30-40 new cleft lip repairs each year.. The surgeon should be part of a team at a major U.. S.. or Canadian medical center where the operations are performed.. Tips for Visiting your Medical Team.. When scheduling a visit to your child's care team, plan  ...   can be long.. Your spouse, partner, friend, or grandparent (someone to chat with you and help play with your child).. Diapers and wipes.. Snacks, bottles, and formula.. Reading material, knitting, or other ways to pass the time.. A stroller (so your child will be able to lie down or be seated if chairs are limited).. Toys.. A sweater for your and/or blanket for the baby.. Parking ticket for validation.. A list of your questions written in advance of your visit.. A large pad of paper and pen for taking notes.. Collect business cards from the doctors and other health care professionals you meet.. Insurance referral authorization and hospital and insurance cards.. X-rays and medical records.. Written copies of test results.. Address and phone number of your pediatrician.. A cell phone or pre-paid phone card in case your visit runs longer than anticipated and you need to call home or work.. A sense of humor!..

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  • Title: Foundation For Faces of Children » Issues and Advice
    Descriptive info: Prenatal Diagnosis.. Infancy and Childhood.. American Academy of Pediatrics Offer Tips on Prevention and Management of Skull Deformities in Infants.. There has been an increase in the last several years in the number of children with flattened heads, according to a clinical report from the American Academy of Pediatrics (AAP) entitled,.. Prevention and Management of Positional Skull Deformities in Infants.. The report says the increase is probably due to recommendations by the AAP that children be put to sleep on their backs to prevent Sudden Infant Death Syndrome (SIDS).. The report notes that the condition is, on the whole, preventable and treatable.. Genetic Study of Nonsyndromic Cleft Lip  ...   child's cleft lip and palate? This question is frequently asked by parents.. Usually they are told that the cause cannot be determined for their child.. the textbook explanation is that cleft lip is caused by a complex interaction of genes and the environment.. Research in this field has begun to accelerate since the mapping of the human genome.. The following article is an update on the genetics of cleft lip and palate written by Dr.. Jacqueline Hecth, a well-known geneticist researcher at the University of Texas.. Many of the families in the Cleft Lip/Palate Program at Boston Children's Hospital have participated in her ongoing studies by contributing blood samples..

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  • Archived pages: 97